Question:
I am a Ph.D. in the Michigan area. My practice is mostly
Fibromyalgia patients. I have Fibromyalgia and understand what it is to live
with the syndrome and relate, very well, to my patients.
I am in the process of publishing a book on Fibromyalgia. My goal is for it to
be a resource for those with the disease. It will be divided into a medical
section, alternative section and then input from patients. Some of the top
researchers and physicians from Michigan will be contributing chapters, so I
think it should an excellent resource, especially for those living in MI.
If you are from Michigan, and would like to contribute your story to the book
just drop me a line. I am looking for stories of people that have thyroid
disorders and Fibromyalgia.
Answer:
First of all, best wishes to you and the potential success of your
book and research.
Couple of questions: Are contributions only to be from local persons
living in MI?
Some of us have been "told" from a health care professional that we have
fibromyalgia. My DX came from my local chiropractor, whom I do happen to
like and appreciate his service, on the occasions when I need it.
Sometimes though he puts pressure on those common trigger points, and
just watches me squirm ;) However, I have never been tested for
fibromyalgia, as in actual blood tests, or whatever tests are given to
detect it. When I go to the county clinic to see my nurse practitioner I
mention that I was told I have fibromyalgia, and she just rolls her eyes
back in her head, and expresses that it is just a vague term, and I get
the impression she thinks it is used mainly to placate "complainers."
So, my second question would be how does someone know they really have
fibromyalgia? And if one can not afford to get tested, are the given
commonalties enough to go on for a DX? (Kind of the same for Chronic
Fatigue. Years ago that's what my doc wrote down on my chart, before my
hypo dx. I was never tested for that either
